Monday, December 22, 2008
Monday, December 1, 2008
Monday, November 24, 2008
Desmoplastic small round cell tumorWhat is it? Desmoplastic small round cell tumor (DSRCT) is a rare, highly aggressive tumor. This cancer almost always arises in the abdomen, but other primary sites have been described. This form of cancer spreads locally to lymph nodes and lining of the abdomen. It can also spread to the lungs, liver and bones. This cancer is more common in males and usually affects adolescents and young adults. The tumor has a characteristic genetic finding called a translocation. A portion of chromosome 11 is translocated to a portion of chromosome 22. Identifying this translocation is useful in confirming the diagnosis.
What are the symptoms? Symptoms depend on the primary site of disease and the extent of disease at diagnosis. Patients with abdominal primaries often present with an enlarged abdomen and abdominal pain. They may also present with vomiting and weight loss.
How is it treated? Desmoplastic small round cell tumors are often treated with aggressive chemotherapy, radiation and surgery. It is important to surgically resect (remove) all sites of disease in order to eradicate the cancer. Unfortunately, this is often not possible. Using chemotherapy to shrink the disease prior to attempted resection is a reasonable approach. Some patients with DSRCT may benefit from more intensive therapy with autologous peripheral blood transplants, especially if they respond well to more standard therapy regimens.
What is the outcome? The overall prognosis for patients with DSRCTs is poor with less than 20% of patients expected to live more than 5 years after diagnosis. However, it depends largely on the ability to surgically remove all tumors.
Tuesday, November 18, 2008
Wednesday, November 5, 2008
Monday, November 3, 2008
Friday, October 31, 2008
Wednesday, October 29, 2008
Friday, October 17, 2008
Wednesday, October 1, 2008
Monday, September 15, 2008
Friday, August 29, 2008
Sunday, August 24, 2008
Thursday, August 21, 2008
Date to remember. Thursday, September 25th we will be having our first annual Sky Jackson Golf Tournament Fund Raiser at Vintners Golf course in Yountville. I will have more details for you at the end of the week. Feel free to email me or Jason Smith with any questions. Thanks Lisa.
Wednesday, August 20, 2008
Friday, August 15, 2008
Wednesday, August 13, 2008
But on the other note I'm fifty fifty about my cancer maybe my cancer will die easily with the chemo because they don't know any thing about it, I just kinda want a doctor that seen my kind of case and knows how to cure me, But I really like my oncoligest she so nice and optimistic but I need someone that ready for this and knows what to do.
As far as today I feel good and I think i
I'm going to rematch Aaron at golf. I love everyone,Sky
Monday, August 11, 2008
Saturday, August 9, 2008
Thursday, August 7, 2008
Tuesday, August 5, 2008
Saturday, August 2, 2008
I have high hopes that I will be able to make it through this chemo just fine.
Thank you everyone for all of your love support.
Thursday, July 31, 2008
Wednesday, July 30, 2008
Tuesday, July 29, 2008
Saturday, July 26, 2008
Sky headed out to Napa yesterday. Everyone loaded into the Fight Cancer rented RV, and started the long drive to Napa after sky had some tests done at the hospital. I could tell he was still in good spirits during the drive when i got the phone update (i had left with David 3 hours earlier) , jokingly telling me about his testicular exam and a an old Iranian doctor(i will let you use your imagination)!
So i received the call late after i had already arrived that they had indeed made it too the Bay Area and all was well. I will be doing my best to keep this site updated during the busy weekend. We hope to see all of you at the event.
I really wanna say thanks to everyone commenting everyday and leaving words of hope and encouragement. He feeds off of these comments and looks forward to reading them. As praise was given in the previous post i also want to thank you all for the tons of support you have given Sky, It is truly amazing to me that people can still rally together in times of hardships. BLESS YOU ALL!
Thursday, July 24, 2008
Sky wanted me to tell everyone that the last two days have been much better and he is gaining his strength and his appetite is coming coming back. He is really looking forward to seeing everyone at the event on Sunday at Billco's. What everyone has done has been amazing, a miracle in itself. To all who have went above and beyond, we thank you from the bottom of our hearts. Please keep the comments coming as they help keep his spirits up to know that people are still thinking of him and wising him well.
I wish to personally thank Nicole, Crystal, Carly, and Joyce for being here and doing everything around the house and taking care of Sky. To be honest you all are angels, and anyone would be hard pressed to find people as caring and loving as all of you. Please send some thanks to these great ladies for really doing all the hard things.
Tuesday, July 22, 2008
Saturday, July 19, 2008
It's been a hard week, Im sorry i havent had the strength to keep the blog up to date, i am hoping that i will be at home soon and back on track. Thanks everyone for all your support
Sky is still in the hospital, looks to be here until at least monday. We are hoping that he will be out then, but the doctor wants him to be eating solid foods without felling sick to his stomach. The early prognosis is that the first cycle of chemotherapy is doing its job as the oncologist has said she feels the tumor has gotten a little smaller. We are encouraged by the news and hope that the next cycle will bring better news with a CT scan of the tumor hopefully showing signs of more shrinkage. Not much else to say, he wishes he could see everyone who is coming to visit, but he is on nuetropenic precautions and his white blood cells are still low and he is very susceptible to infection with his immune system this low. a kind and encouraging word on the blog will be greatly appreciated. Thanks everyone again, you find out how amazing people can be during times like these.
We love you all.
Thursday, July 17, 2008
Well, i am happy to say that sky had a much better day today! He was in good spirits and joking with the nurses and all of us. His nausea has subsided for the most part, and he took his last chemotherapy pill of this cycle today as well too. His white blood cell count was low, but that was to be expected, and the doctor gave him a shot to speed up the process of rebuilding the white blood cells. I don't wanna get everyone's hopes up too much, but the doctor even gave Sky permission to attend the benefit, seeing as it will fall on the same weekend as what is scheduled to be his strongest days, right before his next chemotherapy cycle. So everyone pray that he will be feeling good enough to go up to Napa.
Right now he is still in the hospital, but the good news being that he was finally moved up to the oncology ward, and away from the idiots he was surrounded by before. We are hoping for a release from the hospital soon, but he has to be having bowel movements and keeping food down as well as not having any fever, which he had last night.
It was just great to see him being Sky today, as opposed to yesterday. We love you buddy! Cant wait to have you home again.
Ok, sorry for the late post but we wanted to try and give the most updated news and things kept changing yesterday.
Sky is still in the hospital, but has had some "relief", in fact the last i had heard, was that he passed a solid movement! Which is great because the x-rays yesterday showed that he still had a solid block in the small intestines.
Ok, so the tumor is pressing on his lower intestines making it very difficult for him too pass any stool, this is a problem we are hoping to solve with the Chemotherapy hopefully shrinking the size of the tumor to release the restriction.
Sky was very tired yesterday, and in quite a bit of pain at sometimes, but i blame the crappy ass hospital he is in. seriously, you would not believe the level of incompetence at this hospital.
Nobody is on the same page, absolutely no one is on the same page.
His spirits are low as far as i could gather so maybe some extra prayers are needed today.
Thanks everyone i will post more when i know.
Tuesday, July 15, 2008
Today sky still wasn't feeling to well, he was tired in the morning but as the afternoon wore on, he was able to pass some stool which was promising. He had to go to the doctor to have blood taken to check on the status of his chemotherapy and decided that it would be a good idea to head over to the E.R. to discuss his bowel obstruction. The good news is that they have decided not to have surgery, but instead try to flush it out. He will be staying the night tonight at the hospital and get an I.V. to get some much needed nourishment into his system that has been depleted due to the chemo. That is really all the information i have. Nicole and Joyce are with him now and i will be heading over to bring some comforting things to him for his stay tonight. Sorry there isn't more info right now, but i will update as soon as i hear more.
Thanks for all the positive feedback please keep it coming, Sky loves you all and was joking on the phone with me earlier from the E.R. room.
Thanks and One Love.
Monday, July 14, 2008
Sky has already gone to sleep today, he was very tired and uncomfortable for most of it. Tomorrow he may have to be admitted the the hospital because he is having difficulty passing bowel movements and it is making him very uncomfortable. The tests came back on his lungs, and he indeed has cancer spots in his lungs as well. I know the news posted today is not great, but we thought that everyone would still appreciate the update, good or bad. Nicole and Crystal are here taking care of Sky, and Joyce arrived tonight too, so he is well taken care of. We are praying that all goes well tomorrow, and he gets the relief he needs. Sky, we all love you very much.
Also, we need to get volunteers together for the event, so if you have time on Sunday the 27th, and would like to donate it to a worthy cause, please contact Jason or Lisa to let them know.
We have received over $1,500.00 in donations through the website and countless donations from businesses, individuals, friends and family. The amount of work all of you are putting in makes me choke up. All of you are the definition of true friends.
Sunday, July 13, 2008
Saturday, July 12, 2008
We are very happy to announce that there are so many people helping sky now that it has gotten beyond my control. Although I'm very excited that everyone is doing so much to help, i have some concerns.
The Cause started on Myspace.com, does not donate directly to sky's fund like it says, but rather to the American Cancer Society, a noble cause to say the least, but right now, its not gonna help Sky.
We ask that you do not donate to the cause page, and also that the person who started it, please contact me as i'd like some thing changed on the main page.
as of right now, the only safe places to donate to sky's fund are on his blog through paypal which is completely secure, and at Washington Mutual itself. That is straight from the source, those are the only places you should donate cash too.
Friday, July 11, 2008
Thursday, July 10, 2008
Again i want to extend my thanks to everyone helping out, you have all been fantastic! We have been receiving a trickle of Paypal donations and are just a few hundred shy of our first thousand!! We will need much more money for outside treatment so please for those who have yet to donate we implore you to dig down and try to find a way to help out in these hard times. You can be assured that all proceeds will be going to Sky's treatment.
Once again to all those who have donated and left kind words of encouragement, God Bless,
Sky will update his blog later tonight for all of you wanting to know about his day.
Wednesday, July 9, 2008
Tuesday, July 8, 2008
We will soon have a link on here to paypal donations online.
Anyone planning to visit Sky in the coming weeks has to take precautions, if you have been sick recently or have been around anyone sick we would have to ask that you keep your support to phone calls and internet posts until you are better since Sky's chemo has reduced his immune system. Those with small children should be aware that runny noses and coughs can cause serious health risks for Sky.
Sorry for the long post, but we have a few more requests:
If you are coming to visit, and we hope you are, please only bring things that are on the following list as increased people here puts a strain our resources.
Here is the list:
hand sanitizer-(must be used to see him)
surgical masks-(must be used to see him)
100% fruit juices.
For now that is all we need, please dont bring anything extra as we are on a surplus of trash here.
Thanks everyone so much, we really appreciate your help and love.
Monday, July 7, 2008
Sunday, July 6, 2008
-aaron- Sky ate some food in the afternoon after a tough morning again. Carisa's friends and family who know sky came by today and visited with him. James also came over for a bit. Nicole and Joyce have been awesome and have been staying with sky at night. God bless all of you who have showed support and love, it is greatly appreciated. We are continuing to remain positive that tomorrow will bring better news and more hope that we can start a solid treatment plan for recovery. We love you all.
Saturday, July 5, 2008
Friday, July 4, 2008
Thursday, July 3, 2008
Wednesday, July 2, 2008
Looking forward to a good night sleep.