T Ball

So tonight we get started on my sons baseball career. I'm going to manage the team and my brother is going to help coach its going to be a blast. I've had a rough couple of weeks with pain and everything but I'm feeling a lot better know. My toes and now my fingers are starting to get numb and thats a bad sign since i just started this chemo less then two weeks ago but I'm not telling my doctor for now cause there barely numb. I don't want to be forced to stop the chemo after that its clinical trials and thats kinda a crap shoot. We talked about surgery and she seems so doubtful since its in my bone, lung, liver, spline and omentum. So were just taking things one day at a time. I'm stoked for T Ball though its going to be fun chasing around 13 five yr olds. ttyl love sky

the new news

O.k. so a pathologist at Harvard University has tested my biopsy and came to the conclusion that it is desmoplastic small round cell tumor and I have started a new chemo as of yesterday. This chemo is called a v.a.c. combo and were going for 4 to 6 cycles then to clinical trials at city of hope. I hurt a lot right now and my liver is bad but I think it will all change with this cycle. I'm in high hopes and I'm excited to see how this new chemo will do. As far as my personal life I'm going to be the manager of my sons tee ball team and my brother is going to help so its going to be a good time. Thanks for everyones support love sky.