tag:blogger.com,1999:blog-59866018552786873272024-03-13T19:38:10.492-07:00Sky's Friends & Family UpdatesThis blog is for Sky Jackson to keep his friends and family updated on his current health issues. Please spread the word to everyone who you may think would be interested keeping up to date on Sky's battle with cancer. Positive comments are welcome and appreciated!scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.comBlogger63125tag:blogger.com,1999:blog-5986601855278687327.post-13249790148185172792010-01-14T13:55:00.000-08:002010-01-18T13:50:38.080-08:00Memorial - UPDATE<div align="center">PLEASE READ ENTIRE POST </div><br /><br /><div align="left">Many of you know by now that my brother Sky courageously lost his battle to cancer last Sunday morning. He is living peacefully and pain free again and will be greatly missed. </div><br /><div align="left">Memorial services will be held on Jan 23, 2010 at the Lincoln Theater at the Vet's home in Yountville , CA from 11-3. THIS IS A SOBER EVENT. <strong>ANYONE</strong> showing up intoxicated WILL <strong>NOT</strong> be let in.</div><br /><div align="left">Here is a potluck sign-up sheet if you plan on attending. We have almost no heat source so unless you bring your dish in a crock pot or chafing dish with Sterno cans a cold/room temp dish may be best. I created spaces for 100 for each category but we will undoubted need more to sign up. Anything you can bring will be GREATLY appreciated. Serving utensils will not be provided so please bring your own and either mark them with your name or bring something disposable.</div><br /><div align="left">If all four sign up sheets don't show up on the first page you can click on "older posts" at the bottom and other sign-up sheets should show up. You may need to keep scrolling through. <em><strong>Place a comment on the bottom of the category</strong></em> with what you would like to bring and <strong><em>I'll add your name</em></strong> to the list above. </div><br /><div align="left">We have 960 sodas being donated by Pyramid Brewing Company (A HUGE thank you) but we may need more - doesn't include cola. We will also need bottles of water.</div><br /><div align="left">Also, the Sky Jackson Memorial Fund at Wells Fargo is now up. If you wish to contribute you can go into any Wells Fargo bank and donate funds into the Sky Jackson Memorial Fund. Any excess funds after service expenses will roll over into a trust for Zion and/or one of his cancer foundations. Thank you all for support. </div><br /><div align="left">I may update this post periodically so check back. I will try to say UPDATE in the title. Thank you all and if you have any question please feel free to email me at <a href="mailto:nacj96@aol.com">nacj96@aol.com</a>. </div><br /><div align="left"></div><div align="left"><strong>UPDATE</strong> - For the plates and napkins we are going to do them themed. So if you would like to bring a package of plates/napkins just pick one out that reminds you of Sky, i.e. surfing, golf, fish, 49ers, A's, etc... I know Party City has 49er and A's ones online. Today I picked up some that look like bandanas. Just make sure you let me know that you got some and how many. Thanks!!!</div>scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com1tag:blogger.com,1999:blog-5986601855278687327.post-75273911312531735212010-01-14T11:14:00.000-08:002010-01-21T23:25:02.848-08:00Potluck sign-up beveragesBeverages<br />1Jen/Brian Bator - soda (960)<br />2 Jessica/Terry Gilbert - 2 cases water<br />3 Amanda/Gabe Palmquist - 2 cases water, mixed case soda<br />4 Sarah/Elliott Paddock - water and soda<br />5 Lara/Dan Reynoso - 2 cases water<br />6 Jessica Jackson - water and soda<br />7 Lacey Mahoney -Iced tea<br />8 Melanie Dymer - drinks<br />9 Jamie Kessler - 2 cases water<br />10 Mary (Kelly's mom) - water<br />11<br />12<br />13<br />14<br />15<br />16<br />17<br />18<br />19<br />20<br />21<br />22<br />23<br />24<br />25<br />26<br />27<br />28<br />29<br />30<br />31<br />32<br />33<br />34<br />35<br />36<br />37<br />38<br />39<br />40<br />41<br />42<br />43<br />44<br />45<br />46<br />47<br />48<br />49<br />50<br />51<br />52<br />53<br />54<br />55<br />56<br />57<br />58<br />59<br />60<br />61<br />62<br />63<br />64<br />65<br />66<br />67<br />68<br />69<br />70<br />71<br />72<br />73<br />74<br />75<br />76<br />77<br />78<br />79<br />80<br />81<br />82<br />83<br />84<br />85<br />86<br />87<br />88<br />89<br />90<br />91<br />92<br />93<br />94<br />95<br />96<br />97<br />98<br />99<br />100scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com3tag:blogger.com,1999:blog-5986601855278687327.post-2213211782160900372010-01-14T11:13:00.000-08:002010-01-20T14:04:27.171-08:00Potluck sign-up dessertDessert<br />1 Lindsay Hansen - cupcakes (96)<br />2 Jessica Gilbert's mom- cobblers<br />3 Jessica Gilbert - lots of chocolate chip cookies<br />4 Sarah/Elliott Paddock - cookies<br />5 Brittany Chilton/Joe Mangiaracina - brownies (80)<br />6 Carly's madre - brownies<br />7 Abraham Rodriguez - dessert<br />8 Eric Neff - Brownies bites<br />9 Amanda/George White - Rice crispy treats (80)<br />10 Jessica Jackson - cupcakes or cake<br />11 Angel/Kevin McKay - cookies<br />12 Jill Mally - choc. peanut better chip cookies and pound cake<br />13 Lacey Mahoney - brownies<br />14 Lara Reynoso - cookies<br />15<br />16<br />17<br />18<br />19<br />20<br />21<br />22<br />23<br />24<br />25<br />26<br />27<br />28<br />29<br />30<br />31<br />32<br />33<br />34<br />35<br />36<br />37<br />38<br />39<br />40<br />41<br />42<br />43<br />44<br />45<br />46<br />47<br />48<br />49<br />50<br />51<br />52<br />53<br />54<br />55<br />56<br />57<br />58<br />59<br />60<br />61<br />62<br />63<br />64<br />65<br />66<br />67<br />68<br />69<br />70<br />71<br />72<br />73<br />74<br />75<br />76<br />77<br />78<br />79<br />80<br />81<br />82<br />83<br />84<br />85<br />86<br />87<br />88<br />89<br />90<br />91<br />92<br />93<br />94<br />95<br />96<br />97<br />98<br />99<br />100scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com7tag:blogger.com,1999:blog-5986601855278687327.post-15569502790583618112010-01-14T11:07:00.000-08:002010-01-21T23:28:24.031-08:00Potluck sign-up side dishSide Dish<br />1 Carisa Jackson - cold pasta salad<br />2 Carly Montalbono - cheesy potatoes<br />3 Nicole Johnson - cabbage salad<br />4 Jessica Gilbert's sister - very big pasta salad<br />5 Anna Drumright - 7 Layer dip (2)<br />6 Staci Raab - Wieners and Meatballs<br />7 Amanda/Gabe Palmquist - really big green salad<br />8 Brittany Chilton/Joe Mangiaracina - Deviled eggs (100-150)<br />9 Jessica/Terry Gilbert - Black beans<br />10 Jessica Gilbert's cousin - Greenbean casserole<br />11 Abraham Rodriguez -Veggie tray (3)<br />12 Tracy LaPoint/Kenny Jones - tortilla rolls<br />13 Tim Knox - potato and pasta salad<br />14 Genevieve Janovich<br />15 Siobhan Gagon - large fuit salad<br />16 Sarah Navarro - chips and salsa<br />17 Angel/Kevin McKay - Twice baked potato salad and pesto pasta salad<br />18 Judy Ohliger Filippoff - southwestern salad<br />19 Lacey Mahoney - pasta salad<br />20 Nikki Calleja - chips<br />21 Debbie Williams - potato salad<br />22 Angie Hutchinson - 7 layer dip and chips<br />23 Melanie Dymer- Salad and spinach dip with bread<br />24 Lara Reynoso - fruit or veggie tray<br />25 Steve O'Dell - potato salad<br />26 Ray/Robin - meat, cheese, cracker tray & veggie tray<br />27<br />28<br />29<br />30<br />31<br />32<br />33<br />34<br />35<br />36<br />37<br />38<br />39<br />40<br />41<br />42<br />43<br />44<br />45<br />46<br />47<br />48<br />49<br />50<br />51<br />52<br />53<br />54<br />55<br />56<br />57<br />58<br />59<br />60<br />61<br />62<br />63<br />64<br />65<br />66<br />67<br />68<br />69<br />70<br />71<br />72<br />73<br />74<br />75<br />76<br />77<br />78<br />79<br />80<br />81<br />82<br />83<br />84<br />85<br />86<br />87<br />88<br />89<br />90<br />91<br />92<br />93<br />94<br />95<br />96<br />97<br />98<br />99<br />100scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com10tag:blogger.com,1999:blog-5986601855278687327.post-90515867467661664552010-01-14T09:31:00.000-08:002010-01-21T10:57:28.664-08:00Potluck sign-up Main dishMain Dish<br />1Crystal M -Chili<br />2 Nicole Paddock - Chicken Fried Rice<br />3 Amanda/Gabe Palmquist - Shredded pork/beef w/ tortillas<br />4 Tish Holguin - Chili<br />5 Jamie Petrakis - enchiladas & lasagna<br />6 Megan/Mike Martinez - Drumsticks<br />7 Geilfuss Family (Nikki C) - Pesto Penne and Jambalaya<br />8 Clara Willis - Tray of sandwich makings w/ rolls<br />9 Eric Neff - Platter of sandwiches<br />10 Aaron Williams<br />11 Aaron Paddock - bbq beef roast or something<br />12 Kyle - Casserole<br />13 Jill Mally - cold spaghetti salad and chicken and broccoli casserole<br />14 Nikki Calleja - platter of sandwiches<br />15 Kathryn and Mary - pulled chicken and tortillas<br />16 Angela White - chicken and beef<br />17 Croy/Zylene - lumpia<br />18<br />19<br />20<br />21<br />22<br />23<br />24<br />25<br />26<br />27<br />28<br />29<br />30<br />31<br />32<br />33<br />34<br />35<br />36<br />37<br />38<br />39<br />40<br />41<br />42<br />43<br />44<br />45<br />46<br />47<br />48<br />49<br />50<br />51<br />52<br />53<br />54<br />55<br />56<br />57<br />58<br />59<br />60<br />61<br />62<br />63<br />64<br />65<br />66<br />67<br />68<br />69<br />70<br />71<br />72<br />73<br />74<br />75<br />76<br />77<br />78<br />79<br />80<br />81<br />82<br />83<br />84<br />85<br />86<br />87<br />88<br />89<br />90<br />91<br />92<br />93<br />94<br />95<br />96<br />97<br />98<br />99<br />100scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com10tag:blogger.com,1999:blog-5986601855278687327.post-8695771817776616932009-08-25T15:47:00.000-07:002009-08-25T15:50:34.913-07:00good newsThe did a pet scan which shows all the live cancer left in the body and it came back that my liver is now clear, and also my chest and bone are clear. So now we pray for surgery very soon and maybe beat this aggressive cancer. Pray for me its working slowly but surly its going to work. I love you all, Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com10tag:blogger.com,1999:blog-5986601855278687327.post-57162446733179570402009-06-23T16:40:00.000-07:002009-06-23T16:48:30.203-07:00stem cell transplant updateWell my tumors did not shrink to the size they wanted to start the transplant so we will continue more chemo then it looks like surgery then stemcell transplant if we can't get the surgery we will do a low dose chemo so I can live as long as possible the say a year to a year and a half. so I will keep pushing whoever I need to push to get everything done and try to be cancer free. One day at a time. ttyl luv you all Sky.scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com7tag:blogger.com,1999:blog-5986601855278687327.post-3811679503181859232009-05-28T19:33:00.000-07:002009-05-28T19:37:54.985-07:00stem cell transplantTrevors stem cells are a perfect match now we just need the tumors to shrink to 95 percent and my heart to stay at 56 percent and were a go in about two weeks. We might just beat this thing. I'm in the hospital now with my second round of the new chemo and I handle this pretty well so I think the stem cell might be ok also. luv you all. sky.scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com5tag:blogger.com,1999:blog-5986601855278687327.post-15840663747008741442009-05-10T14:56:00.000-07:002009-05-10T15:55:51.355-07:00last pet scanas I posted I'm at city of hope now, unfortunately I'm back in the hospital because I got a little sick and all my blood counts were really low. They have been giving me transfusion for the last couple of days and my body has excepted it with no problems. So starting of from a couple months ago, My kaiser doctor had finished up pretty much all the chemo she could give me so they transfered me here to city of hope, I'm so very happy to be here, there a very high ranked cancer hospital. When I got here they ran a new pet scan to see what cancer was alive, they told me that the cancer is gone from my lungs and my lymph nods and my glands. so now were going threw a very hard chemo because my liver hasn't healed enough to do surgery. But it looks like this chemo will do a good job and then I'll do a stem cell transplant and if my brothers blood is a perfect match I should have minimum complications. The transplant isn't very easy I'll be hospitalized for at least 4 to 6 weeks. so the plan is this last chemo then stem cell transplant then surgery which i might be going to the best surgeon for my cancer in our nation, he is located at sloan-kettering in New York. then after they remove all the tumors we will do a whole abdominal radiation. Then its hopefully cancer free. I've been doing good untill yesteday but so far it ust looks like I got a light infection and I should be going home tomorrow. well I'm getting tiered so I'll write back shortly thanks for all the prayers and love, love you all Sky.scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com7tag:blogger.com,1999:blog-5986601855278687327.post-8671999864809709722009-04-29T17:33:00.001-07:002009-04-29T17:43:51.706-07:00city of hopesorry everyone for the delay. I had to move and then it took a while to get my internet hooked up. There is so much new news, I'm now at City of Hope not at kaiser. I love it here I'm actually here right now for a week receiving a new chemo and it takes a week to administer it to me. There are so many different things here that prove this hospital to be a caring hospital that makes you feel so good about being a patent here. The plan as of right now is to do this aggressive chemo then in 6 weeks we will then do the stem cell transplant that will take about 4-6 weeks for me to recover but after that hopefully surgery and maybe chemo or radiation to cancer free, thats our plan. I'm busy right now but tonight I'll write back to explain whats been going on in better detail again I'm sorry I haven't been able to keep up but I will do my best to write as much as possible. love everyone for your prayers and thoughts. love Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com5tag:blogger.com,1999:blog-5986601855278687327.post-47881960451264634062009-01-20T15:59:00.000-08:002009-01-20T16:11:11.719-08:00T BallSo tonight we get started on my sons baseball career. I'm going to manage the team and my brother is going to help coach its going to be a blast. I've had a rough couple of weeks with pain and everything but I'm feeling a lot better know. My toes and now my fingers are starting to get numb and thats a bad sign since i just started this chemo less then two weeks ago but I'm not telling my doctor for now cause there barely numb. I don't want to be forced to stop the chemo after that its clinical trials and thats kinda a crap shoot. We talked about surgery and she seems so doubtful since its in my bone, lung, liver, spline and omentum. So were just taking things one day at a time. I'm stoked for T Ball though its going to be fun chasing around 13 five yr olds. ttyl love skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com7tag:blogger.com,1999:blog-5986601855278687327.post-75009296093876882952009-01-09T17:18:00.000-08:002009-01-09T17:34:12.516-08:00the new newsO.k. so a pathologist at Harvard University has tested my biopsy and came to the conclusion that it is desmoplastic small round cell tumor and I have started a new chemo as of yesterday. This chemo is called a v.a.c. combo and were going for 4 to 6 cycles then to clinical trials at city of hope. I hurt a lot right now and my liver is bad but I think it will all change with this cycle. I'm in high hopes and I'm excited to see how this new chemo will do. As far as my personal life I'm going to be the manager of my sons tee ball team and my brother is going to help so its going to be a good time. Thanks for everyones support love sky.scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com9tag:blogger.com,1999:blog-5986601855278687327.post-70524170018692472052008-12-22T10:54:00.000-08:002008-12-22T11:05:59.574-08:00sorry for the delayI just got all my tests back and they tests came back that my chromosomes were normal witch rules out the desmoplastic tumor. So now were back to square one but on the good side right now I feel great and just had another ct scan and it came back that the tumors are still shrinking and I haven't done any chemo in two months. My eyebrows have grown back and I feel much better about myself, that was the only little thing that bugged me stupid huh. So our plan with kaiser is to maybe start 3 more rounds of the same chemo then we go to trials. My heart is at the lowest of normal strength wise, a normal heart is 50 to 75 percent mines 52 so were going to try and strengthen it up a little more but over all my quality of life is much better thanks to all my wonderful friends for being there for me. love you all sky.<span style="font-style: italic;"></span>scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com8tag:blogger.com,1999:blog-5986601855278687327.post-12636203362228937512008-12-01T17:01:00.000-08:002008-12-01T17:13:30.810-08:00What a great ThanksgivingI had a great thanksgiving all the fam was there we had great food great time good wine, it was awesome. I got back this morning and started today with my heart scan they want to see if my heart is still strong and ready for the next chemo. I won't get the results for a week, but I have a biopsy where they take samples of the cancer and test it tomorrow. Then I have a pet scan on wed to see how much of the cancer is alive. so we have a busy week lots to learn. so I will write back as soon as we get all the results and I talk to my doctor and get the game plan probably fri. I love you all, Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com9tag:blogger.com,1999:blog-5986601855278687327.post-66661186036692347002008-11-24T18:34:00.000-08:002008-11-24T18:35:18.964-08:00they now know what I have<h1>Desmoplastic small round cell tumor</h1><strong>What is it?</strong> Desmoplastic small round cell tumor (DSRCT) is a rare, highly aggressive tumor. This cancer almost always arises in the abdomen, but other primary sites have been described. This form of cancer spreads locally to lymph nodes and lining of the abdomen. It can also spread to the lungs, liver and bones. This cancer is more common in males and usually affects adolescents and young adults. The tumor has a characteristic genetic finding called a translocation. A portion of chromosome 11 is translocated to a portion of chromosome 22. Identifying this translocation is useful in confirming the diagnosis. <p><strong>What are the symptoms?</strong> Symptoms depend on the primary site of disease and the extent of disease at diagnosis. Patients with abdominal primaries often present with an enlarged abdomen and abdominal pain. They may also present with vomiting and weight loss.<br /><br /><strong>How is it treated?</strong> Desmoplastic small round cell tumors are often treated with aggressive chemotherapy, radiation and surgery. It is important to surgically resect (remove) all sites of disease in order to eradicate the cancer. Unfortunately, this is often not possible. Using chemotherapy to shrink the disease prior to attempted resection is a reasonable approach. Some patients with DSRCT may benefit from more intensive therapy with autologous peripheral blood transplants, especially if they respond well to more standard therapy regimens.<br /><br /><strong>What is the outcome?</strong> The overall prognosis for patients with DSRCTs is poor with less than 20% of patients expected to live more than 5 years after diagnosis. However, it depends largely on the ability to surgically remove all tumors.</p>scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com10tag:blogger.com,1999:blog-5986601855278687327.post-55688706147673554022008-11-18T19:20:00.000-08:002008-11-18T19:31:51.417-08:00bad newsWe have stopped chemo for a while until I get sick again then we will do a two drug combo and see how that works. I got more cancer now, it looks like its in my kidneys also and the bone cancer has spread more in my pelvis and now in my spine. I just got done with a bone scan today and from what I seen was the top half of my spine looked like it was full of cancer and my ribs and a lot more in my pelvis, I'm not a doctor so we will see in a week or less what they say and I'll try to write as soon as I find out. But on a good note i look good and feel good so at least I'm enjoying my life even when its hard to keep going I always change my attitude pretty fast and try to be a positive optimistic man. Just so everyone I love all my family and friends more then this whole world, and I will always be with everyone of you forever. Love skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com7tag:blogger.com,1999:blog-5986601855278687327.post-58251888815232909342008-11-05T09:30:00.001-08:002008-11-05T09:47:21.204-08:00yesterday was a beautiful dayI started out the day working out and building my strength. then Aaron and I went and voted, go Obama. But it looks like prop 8 in cali will pass and thats sad, everyone deserves to love and have the right to marry and be together no mater who they are. If you took away my right I would fight you till the end. But on a bigger note president Obama is going to be in the white house and most people are happy about that we've shown that we are a changing country and there is hope restored and if he keeps the momentum going we can hopefully look forward to a better U.S.A. Congrats to the African American people this was a big day. But after voting I went to talk to my tattoo artist and were working on my arm soon I'm excited to get started. I'll put up pictures when were done. Then Aaron and I went and drove down pacific coast highway to a hippie taco shop in Laguna Beach that had some good taco's. It was a beautiful day, one to remember. Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com8tag:blogger.com,1999:blog-5986601855278687327.post-72565213777353561772008-11-03T17:14:00.000-08:002008-11-03T17:27:07.048-08:00one day at a timeToday has been much better, I woke up with very little pain so I was grateful for that. I have been working out as much as I can and I'm getting much stronger. My toes have been numb now for close to 2 weeks and still remain the same, I've gotten use to it now. I haven't felt it in my fingers yet so I think were all good. I was down and out for a while but emotionally I feel so much better today. I realize that the things that I thought matter sometimes just don't matter at all life is to short for the small stuff. I'm just so happy to be in good enough health to enjoy myself and be able to enjoy my family and friends this thanksgiving. Theres so much to be thankful for. I love you all,Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com3tag:blogger.com,1999:blog-5986601855278687327.post-60999732048262296132008-10-31T11:47:00.000-07:002008-10-31T11:56:49.128-07:00HalloweenI just finished the last of my IV yesterday for round six and today my legs and bones hurt bad, I got my pain meds upped to a higher dose but the pain is still there. I'm going to walk with my son tonight trick or treating as long as I can. I love to be with my son on Halloween he has so much fun every year. This year he's Iron Man, and has worn the costume since we bought it. Its this time of year when the holidays come that I enjoy the most. October is one of my favorite months, then its gabes bday then thanksgiving, then christmas, then we start a new fresh year. I love you all, Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com6tag:blogger.com,1999:blog-5986601855278687327.post-16200174314449440382008-10-29T16:24:00.000-07:002008-10-29T16:45:11.226-07:0029thI've had a rough week this last week and am now starting round six. My toes are numb and are a sign of the chemo taking a long term side effect and will cause permanent nerve damage to my fingers and toes. so at this point they will be forced to stop chemo. I'm very upset and feel like keeping to myself, but I know thats unhealthy. On a good note I took my son over to see one of my bestfriend house to see his son and we had a nice BBQ and today I took him to his first golf game on a big course and we had such a good time. I feel so confused my body feels so much stronger but my will feels so much lower. It just gets hard to have physical pain most of the time just to keep me aware at all times I'm sick. I also wanted to say to robert carter I hope your doing better and try to keep your head up I know hospitals are rough but there will be brighter days. Thanks for everyones support. I love you all, Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com6tag:blogger.com,1999:blog-5986601855278687327.post-27853878583472167542008-10-17T11:44:00.000-07:002008-10-17T12:00:43.625-07:00I'm 28so October 15th I turned 28 it was a fun day. I spent the day with my beautiful girlfriend and my brother and his girlfriend and Aaron and Joe and my cousin Crystal and Sarah and my beautiful son and Sarah and Elliotts son Noah. We went to Knotts berry farm and got tossed around by all the rides it was great. Then we had a nice dinner at buco de pepo. I've been doing good and haven't had any new news about my cancer. I start round 6 on the 28th then we will have another ct scan about 3 weeks after that. I will be done with this chemo session around christmas and I plan on spending some time in Italy when I get my chemo break. I've been gaining muscle and feel much stronger. I'm going to go to the sports store and get some weights and start to put on more muscle. I'm sorry I don't write enough I just haven't received any new info on my health. Thanks to all the people that support me, I am grateful to everyone thats been there for me. Love Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com7tag:blogger.com,1999:blog-5986601855278687327.post-79759904698551163912008-10-01T17:05:00.000-07:002008-10-01T17:25:53.911-07:00wed, the 1st.This last week I got to relax and have fun with some of my best friends and my girlfriend. I had so much fun at the golf tournament the four of us had such a blast, Zeb, Jon, Aaron, and I played a good game. I just got home from my little vacation to nor cal. and I'm working out trying to build my strength back, there is a 5 mile walk for breast and ovarian cancer on oct. 4 and I have full intentions on finishing with no problem. Then its off to disneyland with the kids for the day on sunday. Over all I feel the best I've felt in a long time, I have no new news on my cancer yet except that I feel so much better. I go in for my next round of chemo on the 6th. It will be the start of my fifth round out of eight. I want to thank all my family and friends for all your support and love, I love you all back. TTYL, Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com11tag:blogger.com,1999:blog-5986601855278687327.post-34003041879858728892008-09-15T11:40:00.000-07:002008-09-15T12:05:57.597-07:00sorry everyoneI'm sorry to everyone for not updating my computer <span class="blsp-spelling-error" id="SPELLING_ERROR_0">wasn</span>"t working I've been very busy and just got it back online. <span class="blsp-spelling-error" id="SPELLING_ERROR_1">Ok</span> so lets start with the ct scan, after my third session of chemo they wanted me to be at around 50 percent remission but I'm more around 25 percent. So there is improvement just not as much as we hoped. My quality of life has gone way up I feel good and am happy in my life right now. So now were hoping that the next 3 cycles will be as effective as possible and then my doctor thinks we will hit a plateau and that will be as far as we go with kaiser. We will do 8 total then a pet scan to see how much of the cancer is dead and how much is alive. At that point we will probably take thous results to rational therapeutics and see what he can do. Now about life my cousin just got married and the wedding was beautiful we had such a good time and I felt great all weekend. The <span class="blsp-spelling-corrected" id="SPELLING_ERROR_2">ceremony</span> was great and we danced and danced. Amanda my new cousin looked so beautiful it was breathtaking, <span class="blsp-spelling-error" id="SPELLING_ERROR_3">gabe</span> your a lucky man. And I got to kiss one of the most beautiful girls in the world so I had a great time. I love you all, talk to you soon, sky.scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com16tag:blogger.com,1999:blog-5986601855278687327.post-52367049195028292892008-08-29T15:07:00.000-07:002008-08-29T15:28:12.930-07:00friI've had a good week to weekend so far. So I set up a CT scan for the 4<span class="blsp-spelling-error" id="SPELLING_ERROR_0">th</span> and that will determine the amount of remission I'm in. Also since I got the new bone IV in my chemo pack i get to get my teeth all updated they need to be in good health for the side effects of the bone <span class="blsp-spelling-error" id="SPELLING_ERROR_1">meds</span>. Because of the OD from this last IV I've had to take twice as many injections to pick it back up. I had to miss my friends wedding this weekend and a small <span class="blsp-spelling-corrected" id="SPELLING_ERROR_2">benefit beacause of the OD its kept my blood cells way to low. Sorry Ell and Sara I'm sure no matter what its going to be a good day. Sorry to all the people I can't get up to see at the tehachapea benefit, I wish i could sorry. I love you all, Sky</span>scjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com18tag:blogger.com,1999:blog-5986601855278687327.post-14333467454312621052008-08-24T20:58:00.000-07:002008-08-24T21:21:18.222-07:00sundaySo when I went in and got my chemo they changed my etoposide from pill form to a new iv and when they did they did the math wrong and gave me a three day session. After the second session the next morning the doctor called me and told me they messed up one the dosage and have already gave me 30 percent to much, good thing I didn't get the third session. They also started a bone strengthner and the pains were everywhere in my all my bones but it only lasted two days. I felt good today and gabe and amanda came down for the weekend and they cooked the best meal since thanksgiving. Our local boy out of Napa brought home the bronze medal from beijing in BMX good job donnie robinson. Also I got to go golfing and Aaron had a great game and killed me. But we had a great time and I'm feeling good. I just had to be careful not to get sick because of the over dose. It seems I should be in the clear and my blood cells I think are up. So love everyone, Skyscjaxonhttp://www.blogger.com/profile/12622743519841059871noreply@blogger.com13