Monday, November 24, 2008

they now know what I have

Desmoplastic small round cell tumor

What is it? Desmoplastic small round cell tumor (DSRCT) is a rare, highly aggressive tumor. This cancer almost always arises in the abdomen, but other primary sites have been described. This form of cancer spreads locally to lymph nodes and lining of the abdomen. It can also spread to the lungs, liver and bones. This cancer is more common in males and usually affects adolescents and young adults. The tumor has a characteristic genetic finding called a translocation. A portion of chromosome 11 is translocated to a portion of chromosome 22. Identifying this translocation is useful in confirming the diagnosis.

What are the symptoms? Symptoms depend on the primary site of disease and the extent of disease at diagnosis. Patients with abdominal primaries often present with an enlarged abdomen and abdominal pain. They may also present with vomiting and weight loss.

How is it treated? Desmoplastic small round cell tumors are often treated with aggressive chemotherapy, radiation and surgery. It is important to surgically resect (remove) all sites of disease in order to eradicate the cancer. Unfortunately, this is often not possible. Using chemotherapy to shrink the disease prior to attempted resection is a reasonable approach. Some patients with DSRCT may benefit from more intensive therapy with autologous peripheral blood transplants, especially if they respond well to more standard therapy regimens.

What is the outcome? The overall prognosis for patients with DSRCTs is poor with less than 20% of patients expected to live more than 5 years after diagnosis. However, it depends largely on the ability to surgically remove all tumors.

Tuesday, November 18, 2008

bad news

We have stopped chemo for a while until I get sick again then we will do a two drug combo and see how that works. I got more cancer now, it looks like its in my kidneys also and the bone cancer has spread more in my pelvis and now in my spine. I just got done with a bone scan today and from what I seen was the top half of my spine looked like it was full of cancer and my ribs and a lot more in my pelvis, I'm not a doctor so we will see in a week or less what they say and I'll try to write as soon as I find out. But on a good note i look good and feel good so at least I'm enjoying my life even when its hard to keep going I always change my attitude pretty fast and try to be a positive optimistic man. Just so everyone I love all my family and friends more then this whole world, and I will always be with everyone of you forever. Love sky

Wednesday, November 5, 2008

yesterday was a beautiful day

I started out the day working out and building my strength. then Aaron and I went and voted, go Obama. But it looks like prop 8 in cali will pass and thats sad, everyone deserves to love and have the right to marry and be together no mater who they are. If you took away my right I would fight you till the end. But on a bigger note president Obama is going to be in the white house and most people are happy about that we've shown that we are a changing country and there is hope restored and if he keeps the momentum going we can hopefully look forward to a better U.S.A. Congrats to the African American people this was a big day. But after voting I went to talk to my tattoo artist and were working on my arm soon I'm excited to get started. I'll put up pictures when were done. Then Aaron and I went and drove down pacific coast highway to a hippie taco shop in Laguna Beach that had some good taco's. It was a beautiful day, one to remember. Sky

Monday, November 3, 2008

one day at a time

Today has been much better, I woke up with very little pain so I was grateful for that. I have been working out as much as I can and I'm getting much stronger. My toes have been numb now for close to 2 weeks and still remain the same, I've gotten use to it now. I haven't felt it in my fingers yet so I think were all good. I was down and out for a while but emotionally I feel so much better today. I realize that the things that I thought matter sometimes just don't matter at all life is to short for the small stuff. I'm just so happy to be in good enough health to enjoy myself and be able to enjoy my family and friends this thanksgiving. Theres so much to be thankful for. I love you all,Sky