good news

The did a pet scan which shows all the live cancer left in the body and it came back that my liver is now clear, and also my chest and bone are clear. So now we pray for surgery very soon and maybe beat this aggressive cancer. Pray for me its working slowly but surly its going to work. I love you all, Sky

stem cell transplant update

Well my tumors did not shrink to the size they wanted to start the transplant so we will continue more chemo then it looks like surgery then stemcell transplant if we can't get the surgery we will do a low dose chemo so I can live as long as possible the say a year to a year and a half. so I will keep pushing whoever I need to push to get everything done and try to be cancer free. One day at a time. ttyl luv you all Sky.

stem cell transplant

Trevors stem cells are a perfect match now we just need the tumors to shrink to 95 percent and my heart to stay at 56 percent and were a go in about two weeks. We might just beat this thing. I'm in the hospital now with my second round of the new chemo and I handle this pretty well so I think the stem cell might be ok also. luv you all. sky.

last pet scan

as I posted I'm at city of hope now, unfortunately I'm back in the hospital because I got a little sick and all my blood counts were really low. They have been giving me transfusion for the last couple of days and my body has excepted it with no problems. So starting of from a couple months ago, My kaiser doctor had finished up pretty much all the chemo she could give me so they transfered me here to city of hope, I'm so very happy to be here, there a very high ranked cancer hospital. When I got here they ran a new pet scan to see what cancer was alive, they told me that the cancer is gone from my lungs and my lymph nods and my glands. so now were going threw a very hard chemo because my liver hasn't healed enough to do surgery. But it looks like this chemo will do a good job and then I'll do a stem cell transplant and if my brothers blood is a perfect match I should have minimum complications. The transplant isn't very easy I'll be hospitalized for at least 4 to 6 weeks. so the plan is this last chemo then stem cell transplant then surgery which i might be going to the best surgeon for my cancer in our nation, he is located at sloan-kettering in New York. then after they remove all the tumors we will do a whole abdominal radiation. Then its hopefully cancer free. I've been doing good untill yesteday but so far it ust looks like I got a light infection and I should be going home tomorrow. well I'm getting tiered so I'll write back shortly thanks for all the prayers and love, love you all Sky.

city of hope

sorry everyone for the delay. I had to move and then it took a while to get my internet hooked up. There is so much new news, I'm now at City of Hope not at kaiser. I love it here I'm actually here right now for a week receiving a new chemo and it takes a week to administer it to me. There are so many different things here that prove this hospital to be a caring hospital that makes you feel so good about being a patent here. The plan as of right now is to do this aggressive chemo then in 6 weeks we will then do the stem cell transplant that will take about 4-6 weeks for me to recover but after that hopefully surgery and maybe chemo or radiation to cancer free, thats our plan. I'm busy right now but tonight I'll write back to explain whats been going on in better detail again I'm sorry I haven't been able to keep up but I will do my best to write as much as possible. love everyone for your prayers and thoughts. love Sky

T Ball

So tonight we get started on my sons baseball career. I'm going to manage the team and my brother is going to help coach its going to be a blast. I've had a rough couple of weeks with pain and everything but I'm feeling a lot better know. My toes and now my fingers are starting to get numb and thats a bad sign since i just started this chemo less then two weeks ago but I'm not telling my doctor for now cause there barely numb. I don't want to be forced to stop the chemo after that its clinical trials and thats kinda a crap shoot. We talked about surgery and she seems so doubtful since its in my bone, lung, liver, spline and omentum. So were just taking things one day at a time. I'm stoked for T Ball though its going to be fun chasing around 13 five yr olds. ttyl love sky

the new news

O.k. so a pathologist at Harvard University has tested my biopsy and came to the conclusion that it is desmoplastic small round cell tumor and I have started a new chemo as of yesterday. This chemo is called a v.a.c. combo and were going for 4 to 6 cycles then to clinical trials at city of hope. I hurt a lot right now and my liver is bad but I think it will all change with this cycle. I'm in high hopes and I'm excited to see how this new chemo will do. As far as my personal life I'm going to be the manager of my sons tee ball team and my brother is going to help so its going to be a good time. Thanks for everyones support love sky.